PDD-NOS means pervasive development disorder – Not Otherwise Specified. In other words, they know your child is not developing at a normal speed but they don’t know how to classify the disorder yet. For those parents out there, like myself who has a kid that was diagnosed with PDD-NOS that is not necessarily a diagnosis that will carry forward with your child forever. The bottom line is that some of these Autism spectrum disorders can’t be classified at the 2, 3, 4 or even five years old. Aspergers is usually not diagnosed until they are 7 or 8.
So it is important to keep working with the doctors, behaviorists etc and work towards understanding the true nature of the development disorder. I was in a fog thinking that PDD-NOS was it, but the reality of the situation is PDD-NOS means they just don’t know yet. Keep that in mind!
Eli has a very important day today. He is finally being tested by a neurologist to see if we can get a proper diagnosis. PDD-NOS has been pretty close but his academic prowess and intellect far exceed most kids and his IQ is off the chart. We have been thinking maybe he has Aspergers and if that is the case, then maybe he can receive more services that will help him now and later in life.
Of course it is hard, we were elated when his diagnosis was removed and saddened to see that even though he is 100000% better than ever that he still has his issues. I personally think every kid has his little nuances and that is normal, but Eli still does not hold eye contact, although we see him struggling to maintain it and we still see him stim all the time. Eventually this will become a social problem. Kids as they get older just become less tolerant of behaviors that are not normal.
I am nervous for him, and I am scared for his future just like every parent is with a child who is PDD-NOS or on the spectrum of Autism. I wouldn’t trade him in for all the money in the world. To me he is perfect, but will he be perfect to some spectacular young lady one day? Will he be able to get a good job and make a good living? Will he have friends? These are the questions that haunt us all.
On a brighter note, Eli went Kayaking with me this weekend. It was his first time out on the water and he had a blast, he helped me paddle the boat and rescue his mother who rolled her kayak and went into the drink. He was a champion and he didn’t let the water and get splashed bother him. This is a great thing since sensory issues plague PDD-NOS kids a lot.